A fundraiser that aims to raise £65,000 to provide support for the charity ‘Freya’s little legs’ nears closer to the target.
The fundraiser was launched by her father, Darren Bailey, who hopes to raise much needed funds so that his daughter so she can receive access to physio and specialist equipment.
Freya who has cerebral palsy was born with two holes in her heart, and has already been through three operations before the age of five.
Now fighting through six major operations but “she remains to capture” the hearts of many with her “infectious smile and personality.”
However, through her struggles and having cerebral palsy, it has led to many other complications with her physical health, that include not being able to walk.
These obstacles have meant that Freya needs to receive physio, operations and treatments to make her more comfortable.
However, these treatments aren’t available with the NHS, which has created bigger problems for Darren with the costs building up.
And her recent SDR surgery on her spine in January 2018, that cost up to £16,000, relieved a good proportion of the tightness in her legs.
But as she is growing up and becoming not as mobile, Freya also had to have double hip reconstruction surgery in October 2021.
Her physio cost Freya £90 each time, and will need this therapy for many years to come and the rest of her life.
He continued: “Freya gets nothing from the NHS for post surgery or physio.”
Unfortunately, Freya is also now developing scoliosis and requires a spinal operation later this year.
And with the costs continuing to rise, Darren is trying to raise the money through charitable events and donations.
As he continued: “Freya gets nothing from the NHS for post surgery or physio.”
But it hasn’t stopped Darren from trying to reach much needed funds, as he continued: “There is no limit on how much I want to raise for Freya.”
With the target being to reach £65,000, Darren has already raised £61,000.
However, despite his best efforts the fundraising has taken its toll on Darren, who struggles as a full-time working single dad to be Freya’s primary carer.
He continued: “It takes a huge toll on my emotional and physical health but I have to remain positive for my child.”
Although he also added that the battle of fighting to get his daughter the money she deserves and has made him “a stronger person and made him a bit more outspoken.”
However, despite Darren’s battle to raise money, he encountered a new issue.
If the money raised for Freya is not spent on her by the time she is 25, it will be absorbed back into the charity he has used to raise the money.
And as he has encountered this issue, he has been looking at alternative method of raising funds that include setting up Freya’s own charity in her name so that she will be able to keep all the funds.
He said: “The options I have is to create a charity of her own which is a big operation but its something I am willing to do.”
The conditions and struggles that she has faced throughout her life, she continues to remain active by swimming with her dad and enjoys her time at school.
As Darren continued: “She is just like any other 14 year old, she’s always smiling and is a happy little girl.”
The money raised will look to be beneficial for the future of Freya, with one of the pieces of equipment from the raised funds would be used for is a specialist electric wheelchair, something which her dad says would help Freya become more independent.
The vital fundraiser will be essential for the future of Freya’s life and can be donated here.
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